Tag Archives: Aphasia Suport groups

Depression or Anger?

I  have been reading various comments from several different Strokes, Brain Injuries and Aphasia  online Support Groups and realized the commonality is Depression.   A person  will outwardly seem to be in a state of self-isolation, and may have unusual sleeping or eating habits.  After reading journals and speaking with experts I have finally realized depression can be a result of ANGER.  Most people hold their anger in, and after reading and speaking to people in depression their anger can cause the depression.  Stroke survivors, Aphasiacs, Brain injury survivors live in a world of the unknown –

  • fear of another stroke or TIA
  • the ups and downs of rehabilitation
  • frustration
  • coping skills
  • Why me?
  • Disappointment in family or friends – not understanding “you should feel better by now”, “just get over it”, “the rolling eyes when you are using your coping skill” and my all time favorite “stop babying yourself”.

How to deal with anger;  Allow  yourself to feel the anger and think about the best approach to deal with these people – do not get emotional – the anxiety could make you ill.  Write a letter expressing your anger – but do not send it.  Counseling, meditation, and medications can be helpful.   If you begin to feel like hurting yourself such as falling down stairs talk to someone. These are natural feelings for people with depression/anger.

Think of these people/comments as nuisances. You had the courage and perseverance to work through your trauma.  You are the hero, they are just ignorant.

 

 

Advertisements

Leave a comment

Filed under Aphasia, Brain injury, Encouragement, Human spirit, inspirational, perseverance, Stroke

Aphasia can be caused by a Stroke, TIA, and Brain Injuries. According to researchers over 2 million people in the United States suffer from this disorder and over 100,000 people a day are stricken by this disorder. 

Please take a moment of silence and pray for people have 

Aphasia

Leave a comment

June 14, 2015 · 7:48 pm

Last week I visited the Northeast Rehabilitation  Hospital at Pease International  Tradeport in  Portsmouth, New Hampshire.  It is a beautiful facility  with a welcoming and compassionate speech pathology staff. I was invited  to speak to their Stroke and Brain Injury Support Group.  They were a wonderful group of people who listened intently and offered a wealth of information.. The question/answer and discussion segment was enlightening, their stories and accomplishments were outstanding.  We shared our difficulties concerning aphasia, coping skills,  the feeling of isolation, and the awkward feeling of being “different.”  We discussed how the stroke/brain injuries  gave us a  new life which we should enjoy to the fullest.  We decided to discard the ‘old baggage’ and eliminate people from our  life who make us uncomfortable.    I was asked what I missed the most after my stroke; my response was an emotional moment – teaching.  As the group was leaving a lovely woman approached me in tears. She also was a teacher who desperately needed to teach again.  We brainstormed and arrived at some possibilities for her to return to the world of education. She hugged me as we both  cried for our loss of teaching abilities and  new ideas to be part of the education system again including writing lesson plans and up dating curriculum. We both departed with a sense of hope and thoughts of beginning her new life.  Support groups  can change lives – join one to listen and share. You will definitely feel better.

Leave a comment

May 19, 2015 · 6:56 pm

Stroke and Brain Injury Aphasia

Aphasia is the result of a stroke or brain injury. The Brain Injury of Massachusetts offers some wonderful ideas and coping skills.

Aphasia is a complex condition. It affects each person differently and may be hardly noticeable or very severe. A person with Aphasia may find that their communication difficulties can change from day-to-day or even hour to hour. They are likely to be worse when tired, unwell or under pressure.

People with Aphasia have described the experience as being:

“locked inside my own head”

“everything been washed from my brain”

Having Aphasia is often isolating and extremely frustrating. It usually results in loss of work for people under retirement age, with loss of status, social contact and financial security. Roles within the family may change, and friendships and close relationships come under great strain.

Will it improve? Each individual will have a different set of problems and will achieve a different level of recovery. It is impossible to predict how much language the person will regain.

Having the confidence to use whatever language skills remain seems to be even more important than being able to find all the right words. With practice and support, even people with severe Aphasia can continue to express their needs, choices and unique personality.

When you are talking with a person with Aphasia:

  • Choose a quiet place with few distractions if possible e.g. (background noise and more than one person speaking at once can make it very hard to follow a conversation).
  • Gain and maintain eye contact before starting to speak. This will ensure that facial expressions and gestures will give a lot of clues about the message you are trying to get across, even if he/she finds the words hard to follow.
  • Allow plenty of time for him/her to absorb what you have said and to make his/her response.
  • Talk with a normal voice but at a slightly slower speed than usual.
  • Give only one piece of information at a time.
  • Use short sentences.
  • Check you have both understood. Don’t pretend you have understood when you haven’t!
  • Use familiar words and phrases.
  • Make it clear if you are changing the subject.
  • Have a pen and paper handy, as some people can read or write better than they can speak. Sometimes drawing the message or using other ‘props’ (pictures, photographs and real objects) can help.
  • It is easier to answer questions with a “Yes” or “No” answer (closed questions) than questions that need a fuller answer (open questions). For example, “Do you want a cup of tea?” rather than, “What would you like to drink?”
  • It is quite common for people with Aphasia to mix related words when they speak (such as ‘yes’ and ‘no’ or ‘he’ and ‘she’). Sometimes it can help to use gestures (thumbs up or down) or point to a symbol (tick, cross, smiley face, unhappy face) to check the meaning.
  • Avoid shouting, interrupting, patronising or ignoring the person with Aphasia. Many people with Aphasia have had the experience of being treated as “stupid”, “drunk” or “mad”, which makes living with a language impairment even harder to deal with.

Good new is that there are new websites that offer tools to cope with aphasia.  Hope, Humor and Hard work will improve our disorder.

Leave a comment

Filed under Aphasia, Brain injury, Encouragement, Human spirit, inspirational, perseverance, Uncategorized

This week I had the pleasure of meeting BJ Williams at the Brain Injury Association of Massachusetts.  While preparing for my radio program in November I came across an article written by this organization – it was absolutely fascinating.  At times I thought  I was reading an  article on stroke survivors and people with aphasia.  The commonalities we share are amazing.  Especially the number of survivors with aphasia.  I was interviewed concerning my stroke, recovery and aphasia, where I explained my aphasia coping skill.  Mr. Williams is preparing a documentary  for March – Brain Injury month.  Your prayers and support for those who are recovering from a stroke, aphasia or brain injuries are needed.   Just think “But for the grace of God it could happen to you”

Leave a comment

January 25, 2015 · 9:01 pm

Life has been interesting.  I was entering my doctor’s office for a follow-up appointment in February, as I entered the building I had a CVA (stroke) along with fracturing my left shoulder, two  fractures  in my upper and lower arm and a broken wrist,   The left side of my face was a mess. After 25 days in The Hebrew Senior Life Rehabilitation Center and at home rehabilitation I am doing well.  The Hebrew Senior Life Rehabilitation is wonderful.  Good news is that I am returning to doing presentation.

I am so excited and happy  –  As of Thursday, September 25, I will be hosting a radio show on Toginet, Thursdays at 11am EST.  “Sharing Experiences – Knowledge is Power.”  The show will discuss; stroke prevention, strokes, aphasia, special education, family reactions, what to expect  and coping skills. Also  caregiving and the nocuous effects of stress. Please call in with any questions or comments you any have 1-877-864-4869  I would love to hear from you – our discussion could help others.

My speaking engagements include:  Lowell General Hospital Stroke Support Group Dinner, Lowell, MA  on Thursday Oct.2 at 6pm.   Other speaking engagements are in the works – just working out the dates and time.

“Finding My Voice With Aphasia” is doing well and the reviews have been pretty good.  Thank you.

Have a great day, stay healthy and stay safe!

Leave a comment

September 22, 2014 · 7:04 pm

Reaching Out

I will be giving a presentation at the York Public Library, York Maine on Thursday November 21 at noon and then at the York Stroke Support Group on November 25 @ 10:15 am.  The group meets at the Living Well Center at 127 Long Sands Road in York, Maine.  The topic will be stroke survivor issues and aphasia.  I am excited that I may be able to connect and help others with their disabilities.  My  hope is to inspire them and do not give up.

cropped-9781475986709eb.jpg

Leave a comment

October 17, 2013 · 7:35 pm