Tag Archives: determination

Ingnorant Behavior

I attended an event recently. This lovely young lady came to me and we began talking about the day’s events.  I noticed she kept looking over to several young men who were smiling and definitely had an agenda.  Finally she asked me “Why do you use your hand? Are you retarded too?”  My response was ” you are not retarded, you are an  intelligent, and articulate young  lady,”  Her response was she had down syndrome and the young men wanted to know what your problem was and if you were retarded?  “No, we do not use that word and they must be ignorant and drunk.” Using my coping skill I ignored the epitome of ignorance and avoided an upsetting conversation.

Down Syndrome is a genetic disorder which occurs in one out of eight hundred births. Basically it is the 21st gene that has been extra genetic material attached to it which causes physical  and intellectual development (Down Syndrome Association).  Down syndrome  children and parents have made great strides, they are increasingly integrating  into society;mainstream classrooms; working and ordinary activities like everyone participate in during their life.

The courage,  patience, and emotional rollercoaster ride of their parents is beyond believe. It made my stroke/aphasia feel like pebble on the road of life.  Some people forget we are all in this world together and need to accept differences.

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Filed under Aphasia, inspirational

Life has been interesting.  I was entering my doctor’s office for a follow-up appointment in February, as I entered the building I had a CVA (stroke) along with fracturing my left shoulder, two  fractures  in my upper and lower arm and a broken wrist,   The left side of my face was a mess. After 25 days in The Hebrew Senior Life Rehabilitation Center and at home rehabilitation I am doing well.  The Hebrew Senior Life Rehabilitation is wonderful.  Good news is that I am returning to doing presentation.

I am so excited and happy  –  As of Thursday, September 25, I will be hosting a radio show on Toginet, Thursdays at 11am EST.  “Sharing Experiences – Knowledge is Power.”  The show will discuss; stroke prevention, strokes, aphasia, special education, family reactions, what to expect  and coping skills. Also  caregiving and the nocuous effects of stress. Please call in with any questions or comments you any have 1-877-864-4869  I would love to hear from you – our discussion could help others.

My speaking engagements include:  Lowell General Hospital Stroke Support Group Dinner, Lowell, MA  on Thursday Oct.2 at 6pm.   Other speaking engagements are in the works – just working out the dates and time.

“Finding My Voice With Aphasia” is doing well and the reviews have been pretty good.  Thank you.

Have a great day, stay healthy and stay safe!

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September 22, 2014 · 7:04 pm

The Power of Love

 

seyed mostafa zamani / Foter / CC BY

A close friend’s brother had a stroke several weeks ago (he is unable to speak and is beyond frustrated), she noticed that I move my hand when I speak and I explained the purpose. Today she  wrote me the following:   “I tried to get the idea across about speaking a syllable with every stroke of the pen on paper, but we just ended up giggling, but when I flipped the page, he didn’t want me to help him and he wrote his 1st word, clear as can be:
l o v e
We hugged and he went on to write 3 more words that didn’t spell anything, then before I left after my niece and sister returned, they said I think he wants to write again, so I flipped the page and he wrote once again:
l o v e
I was on cloud 9 all the way home ! I believed in him and the power of prayer, and felt that with hard work and
determination he would be able to speak again. This word on paper, spoke loudly to me, that love will get him through.
I thanked God that I met you and heard your story, then bought your book. It has been the most helpful tool for us and worth all of your work in the writing  it.  I will try to get some time again with him later this week and will put that pen back in his hand.  Thanks again for your insight into the effects on the mind and body of a stroke patient.”

The purpose of the book was to hear the success of stroke survivors. My story made the three years of writing my book very moving and special for me.

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Filed under Aphasia, Encouragement, Stroke